I am thrilled to release that our 11 year old has been accepted into the preliminary part of a clinical research study at Children's National Hospital, in Washington D.C. The primary focus of this study is to test a medicine currently undergoing FDA trial for approval. Similar to Namenda, a medicine already on the market for Autism, this drug is also used for Alzheimer's and is suspected to increase the cognitive connections.
DAY 1
We were introduced to a team of doctors working on this trial together in the psychiatry ward at Children's including a child psychiatrist and psychologist. Each department preformed a vigorous set of tests each lasting nearly an hour.
The general testing was to understand the current state of his physical body; blood-work, EKG, weight, height, urine samples etc.
Secondary testing was a series of questions utilized as an observation of his IQ, preformed by a senior psychiatrist.
Final testing was simple observation of behavior under certain activities by another doctor.
Conclusively; many words could describe what it is like to undergo these procedures with a severely autistic child. Endearing is my choice for day 1 as we subjected him to many trying settings and everything he gave us was positive, with good intent and love. How proud we are to watch him grow and how equally blessed to experience the possibility of this growth along side him.
